At the Prader-Willi Syndrome Association (PWSA) in Elizabeth City, NC, we are dedicated to providing vital support and resources for individuals diagnosed with Prader-Willi Syndrome and their families. Our Family Support team offers comprehensive assistance tailored to your needs, including accurate information at the time of diagnosis, mentoring for parents, educational resources for nutritional planning, and guidance on effective behavior management strategies. We are also here to help navigate the complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with us through our local chapter using our online locator or by emailing us to join one of our supportive Facebook groups, ensuring you feel connected and empowered during this journey.