Family Support

Located in Washington, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals living with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to delivering accurate information and holistic assistance from the moment of diagnosis, ensuring families feel empowered and informed. We offer a range of services, including guidance on behavioral management, nutritional education, and meal planning, alongside invaluable support with navigating Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we invite you to connect with your local PWSA chapter via our online chapter locator or join one of our Facebook Support Groups for a community of care and shared experiences.