Family Support

Based in Fulton, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team offers essential resources, including accurate information and comprehensive assistance at the crucial moment of diagnosis. We provide vital services such as parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families can connect with their local PWSA chapter through our online chapter locator or join one of our Facebook Support Groups for community support.