Family Support

In Frostburg, MD, the Prader-Willi Syndrome Association (PWSA) serves as a vital resource for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is dedicated to offering accurate information and comprehensive assistance from the moment of diagnosis, ensuring that families have a trusted ally in their journey. We provide crucial services such as parent mentoring, nutritional education and meal planning, behavior management support, and guidance for navigating applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support services, families can utilize the online chapter locator or reach out via email to join one of our Facebook Support Groups, reinforcing our commitment to fostering a supportive community.