Family Support

Based in Walker, LA, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team provides essential resources and guidance during the challenging moments following a diagnosis. We focus on delivering accurate information, parent mentoring, and educational programs that include nutritional guidance and meal planning, as well as behavior management strategies. Additionally, we assist families navigating application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our local chapter and access these supportive services, reach out through our online chapter locator or join our Facebook Support Groups.