Family Support

Located in Jeanerette, LA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals with Prader-Willi syndrome, as well as their families and caregivers. Our Family Support program is a vital resource that offers accurate information and compassionate guidance right from the moment of diagnosis. We focus on delivering comprehensive services including parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we assist families with navigating crucial processes related to Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families are encouraged to reach out to their local PWSA chapter through our online locator or by emailing us to connect with supportive communities on Facebook.