Family Support

Located in Iowa, LA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing critical support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to delivering precise information and compassionate assistance from the moment of diagnosis. We offer a variety of services, including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support services, reach out through our local chapter via the online chapter locator or email us to join our active Facebook Support Groups.