Family Support

Based in Coushatta, LA, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering essential support to individuals affected by Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is here to provide accurate information and comprehensive assistance during the crucial moments following a diagnosis. We focus on a range of vital services, including personalized parent mentoring, nutritional education and meal planning, behavior management support, and guidance with Medicaid applications, insurance claims, and SSI/SSDI processes. We invite families seeking support to connect with their local PWSA chapter or reach out via email to join our supportive Facebook groups, ensuring that no one has to navigate this journey alone.