Family Support

The Prader-Willi Syndrome Association (PWSA) in Great Bend, KS, is dedicated to providing vital support and resources for individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. We understand the challenges that come with a diagnosis, and our Family Support team is here to offer reliable information and comprehensive assistance tailored to your needs. Our program includes personalized parent mentoring, nutritional education, and meal planning, behavior management support, and guidance through the complexities of Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. For support, families can connect with their local PWSA chapter via our online chapter locator or reach out to be added to our Facebook Support Groups.