Family Support

In South Bend, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through comprehensive support and guidance. Our Family Support team is a trusted resource, providing accurate information and vital assistance from the moment of diagnosis. We offer essential services such as parent mentoring, nutritional education and meal planning, behavior management support, and help navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community and access these resources, families can utilize our online chapter locator or reach out via email to join our Facebook Support Groups, ensuring they receive the care and connection they need during their journey.