Family Support

Based in Elkhart, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families. Our Family Support team is here to provide vital resources and guidance at critical moments, helping families navigate the complexities of diagnosis and care. We offer tailored assistance that includes access to accurate information, parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we assist families with crucial applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect and receive support, families can easily reach out through the local PWSA chapter using our online locator, or by emailing us to join one of our Facebook Support Groups.