Family Support

Based in Connersville, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals and families affected by Prader-Willi syndrome through critical support and resources tailored to their unique needs. Our compassionate Family Support team is committed to providing accurate information, parent mentoring, and personalized guidance during the crucial moments following a diagnosis. We offer essential services including nutritional education, meal planning, and behavior management strategies that enhance quality of life. Additionally, we assist families with navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. To connect with our support network, we invite families to reach out through our online chapter locator or join our supportive Facebook groups by emailing us directly. At PWSA, we stand by families every step of the way, ensuring they feel supported and informed.