Family Support

Based in Brazil, IN, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals affected by Prader-Willi syndrome, as well as their families and care providers. We understand the challenges that come with a diagnosis, and our Family Support team steps in to offer accurate information and compassionate assistance when it's needed most. Our program includes resources such as parent mentoring, nutritional education and meal planning, behavior management support, and guidance through application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to reach out through our online chapter locator or via email to connect with our community and access vital support networks through Facebook Support Groups.