Family Support

In Zion, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals affected by Prader-Willi syndrome, along with their families and care providers. Our Family Support team offers vital resources at critical moments, ensuring families have access to accurate information and comprehensive assistance right from the diagnosis. We provide tailored services including parent mentoring, nutritional education and meal planning, behavior management strategies, and guidance with Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) appeals. To connect with our supportive community and access these resources, families can locate their nearest PWSA chapter online or reach out via email to join our Facebook Support Groups.