Family Support

Located in Round Lake, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. We understand the challenges that come with a diagnosis, which is why our Family Support team is committed to offering accurate information and a range of comprehensive services. From parent mentoring and nutritional education to meal planning and behavior management guidance, we strive to empower families every step of the way. We also assist with navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support services, please use the online chapter locator or reach out via email to connect with a community that understands your journey.