Family Support

Located in O'Fallon, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is a vital resource, providing essential information and compassionate guidance from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, behavior management strategies, and assistance with applications and appeals for Medicaid, Social Security Disability Insurance (SSDI), and Supplemental Security Income (SSI). Families can easily access support and connect with peers through our local PWSA chapter or by joining our Facebook Support Groups. We are here to help navigate the challenges of Prader-Willi syndrome with care and expertise.