Family Support

At the Prader-Willi Syndrome Association (PWSA) in McHenry, IL, we are dedicated to empowering individuals living with Prader-Willi syndrome and their families by providing essential support and resources during challenging times. Our Family Support team is here to offer accurate information and guidance from the moment of diagnosis, ensuring families have the tools they need. We provide a range of services including parent mentoring, nutritional education, meal planning, behavior management, and assistance with navigating Medicaid, insurance applications, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support, families can reach out through our local chapter using our online chapter locator or join one of our Facebook Support Groups for a connected community experience.