Family Support

Located in Lake Villa, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our compassionate Family Support team is a crucial resource, providing accurate information and comprehensive assistance right from the diagnosis stage. We specialize in parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support are encouraged to connect with their local PWSA chapter using our online locator, or they can reach out via email to join one of our Facebook Support Groups, ensuring they never feel alone in their journey.