Family Support

Located in Lake In The Hills, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to providing essential resources and guidance at the critical time of diagnosis, ensuring families have access to accurate information and compassionate assistance. We offer various services, including parent mentoring, nutritional education and meal planning, behavior management support, and help with navigating applications and appeals for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can connect with their local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups, fostering a community of understanding and shared experiences.