Family Support

Family Support in Edwardsville, IL, is dedicated to empowering families affected by Prader-Willi syndrome through compassionate and comprehensive assistance. Our committed team provides essential information, emotional support, and guidance since the moment of diagnosis. We offer parent mentoring, nutritional education, meal planning, and behavior management strategies tailored to the unique challenges faced by families. Additionally, we assist with navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families seeking support to connect with us through our local chapter locator or by reaching out via email to join one of our vibrant Facebook Support Groups, fostering a sense of community and shared understanding among those affected by this condition.