Family Support

Located in Dekalb, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering compassionate support and comprehensive resources to individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is here to provide reliable information and practical assistance during the critical moments following a diagnosis. We offer a range of services, including parent mentoring, nutritional education and meal planning, behavior management support, and help with navigating application processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Reach out through our online chapter locator or email us to join one of our Facebook Support Groups and access the support you need.