Family Support

Based in Danville, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team is a trusted resource for families navigating the complexities that accompany this diagnosis, offering accurate information and comprehensive assistance when it's needed most. We provide a variety of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance in applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support resources, please reach out through our local PWSA chapter using the online locator, or join one of our Facebook Support Groups for ongoing assistance and community connection.