Family Support

Based in Carbondale, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources to individuals and families affected by Prader-Willi syndrome. Our Family Support team is committed to offering accurate information and comprehensive assistance right from the moment of diagnosis. We specialize in parent mentoring, nutritional education, meal planning, and behavior management strategies that cater to the unique needs of affected families. Additionally, we guide families through the complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking our support, we encourage you to connect with your local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups.