Family Support

Located in Aurora, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers essential resources and compassionate guidance right when it is needed most, ensuring families have access to accurate information and comprehensive assistance during the diagnosis process. Our program includes parent mentoring, nutritional education and meal planning, behavior management support, and help navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. For more information on receiving support, families can connect with their local PWSA chapter using our online chapter locator or reach out via email to join one of our Facebook Support Groups.