Family Support

Based in Algonquin, IL, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. At PWSA, our Family Support team is committed to offering accurate information and compassionate assistance right when families need it most. We offer a range of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with their local PWSA chapter through our online chapter locator, and those needing community interaction can reach out via email to join our Facebook Support Groups.