PNH Patient Travel Assistance Fund

Located in Boaz, AL, the PNH Patient Travel Assistance Fund is dedicated to supporting U.S. patients with Paroxysmal Nocturnal Hemoglobinuria (PNH) by offering financial assistance for travel to PNH specialists. Each patient can receive up to $800 per year to help cover critical travel expenses such as airfare, ground transportation, lodging, and meals. Additionally, funds can be used for co-pays related to doctor visits and necessary medical tests that insurance may not fully cover. Understanding the challenges faced by PNH patients, this program also allows grantees to travel with a companion, ensuring that individuals can receive the care they need while feeling supported throughout their journey. Our mission is to alleviate some of the burdens associated with traveling for specialized care and to empower patients in their health journey.