PNH Patient Travel Assistance Fund

Based in Soldotna, AK, the PNH Patient Travel Assistance Fund is dedicated to supporting U.S. patients afflicted with Paroxysmal Nocturnal Hemoglobinuria (PNH) by offering vital financial assistance for travel expenses. Each patient can receive up to $800 per year to help cover the costs of traveling to see a specialist or obtain a second opinion. Our program eases the financial burden by providing funding for essential expenses such as airfare, train tickets, ground transportation, lodging, meals, and co-pays for doctor visits or medical tests not fully covered by insurance. To enhance the journey, grantees are welcome to travel with a companion using funds from the assistance provided, ensuring that support is both practical and compassionate.