Family Support

In Healy, AK, the Prader-Willi Syndrome Association (PWSA) is dedicated to enhancing the lives of individuals affected by Prader-Willi syndrome and their families. Our Family Support team is a vital resource, offering timely and accurate information right at the moment of diagnosis, making sure families never feel alone on this journey. We provide critical assistance, including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we help families navigate the complexities of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you are seeking support and guidance, we invite you to connect with us through our local PWSA chapter or join one of our Facebook Support Groups to start receiving the help you need.