PNH Patient Travel Assistance Fund

The PNH Patient Travel Assistance Fund is dedicated to supporting U.S. residents diagnosed with Paroxysmal Nocturnal Hemoglobinuria (PNH) by providing essential financial assistance of up to $800 per patient, per year, for travel related to their care. We understand the challenges these patients face when seeking specialized care, which is why our program is designed to alleviate the financial burden of traveling to see PNH specialists or obtain a second opinion. Our funds can cover various travel-related expenses such as airfare or train tickets, ground transportation costs, lodging, meals, and necessary co-pays for doctor visits or medical tests that insurance may not fully cover. Plus, we encourage patient support by allowing grantees to travel with one companion, ensuring they have the emotional and logistical support they need during their journey. Located in Big Lake, AK, our mission is to empower PNH patients to access vital medical care without the added stress of financial constraints.