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Rheumatoid arthritis

ThisIs543 October 2nd, 2017
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Hi everyone! One of my goals is to make daily self-care posts, including the forums here. I check in with the chronic pain forum pretty regularly, and it seems kind of sleepy. Unless I'm not looking in the right places :-).

So rheumatoid arthritis has been the condition that I've been dealing with for 2 or 3 years now. Long enough that I forgot my diagnosis date! I'm pretty achy, although the pain's pretty well managed by medication and rest. The fatigue, however, can still be pretty bad. I also deal with depression, so sometimes it can be hard to unwind the threads between depression and pain.

I work part-time, which people don't really seem to understand. And sometimes I wish I could do more, but the fact is that 24 hours a week really wipes me out. And I'm lucky that I can make enough money to live on part time. Plus it gives me extra time in the morning for yoga and meditation, extra time with my dog and cats. So at this point I'm not really sure I would want to go back to full-time.

RA is a much different reality to live with than I imagined. But in some ways what I imagined is worse, like my joints don't really get swollen because I'm in early stages. But I never imagined that arthritis could make you so tired, like you're constantly fighting off the flu. So that can be difficult to manage.

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dreamMelody27 January 15th, 2019
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@ThisIs543

I understand you so well! I have rheumatoid polyarthritis, Im still at school but it can be so hard!

Especially because Im not able to walke probably and my school is defently not disabled friendly but even small things like holding a pencil are challenging sometimes. It got so worse that I broke down crying while going upstairs, I just couldnt walk any longer, I was so tired...

I couldnt walk at all for 4 month now and its finally started to get a bit better till a week ago but I react really bad to my medication so I had to stop taking them. Now its starting worsening again and Im just done with this sh**! I just want the pain to stop so could live a normal life again.

They want to give me chemo therapy but I dont want this. I heard of a medication called biologica, whitch could be able to stop the illness completely! They damn expensive but since Im from Germany the health insurance would pay it, hopefully. I will try to aks my doctor to try those instead...

ThisIs543 OP January 22nd, 2019
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@dreamMelody27 I've heard good things about biologics! I know they are hard on the immune system, but if they can improve your quality of life it would be worth it!

I'm sorry you are going through all this. It's so hard. *hugs*

Dreamere January 27th, 2019
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@ThisIs543 I have RA as well I take tumeric vitamins for swelling in case you ever do swell. I use marijuana for pain. As far as fatigue goes I am still searching for something that helps with it because it is so frustrating being tired all the time. 😞

ThisIs543 OP October 2nd, 2017
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Oops, I hit enter faster than I thought I meant to! I was going to finish by saying, I'd like to hear from anybody else who has this condition, or any other autoimmune disease, chronic pain, or chronic fatigue. And how you deal with it.

Emma88 January 11th, 2019
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I haven't smoked weed in more than 30 years, but I do use a CBD oil to relieve pain. It is pretty effective in relieving the pain in my left ankle caused by traumatic arthritis. This article https://www.ncsm.nl/english/cbd-oil/cbd-oil-for-rheumatoid-arthritis proves CBD is effective for dealing with arthritis. Hope you find it useful too