Skip to main content Skip to bottom nav

Epilepsy

User Profile: BookLovingKitten
BookLovingKitten November 7th, 2015

Dear Epilepsy comrades,

I am here if you want an ear to chew on. Please feel free to just drop me a message, I will reply. I am happy to listen.

Let the purple army unite!

Hoping you are all well and seizure free

BookLovingKitten

6
User Profile: Angelapangela82
Angelapangela82 November 8th, 2015

Hi!

I was diagnosed just over a year and a half ago. Grand mals are controlled by zonogram but I still get auras occasionally. Actually new to this site after recent cluster of auras have left me in a 2 week in counting depressive slump. :(

I'm afraid I'm about to lose a relationship over the ordeal which isn't helping. It's bad enough finding anti epileptic meds with minimal side effects but knowing the depression and epilepsy are such BFFS!! Do you know of anyone that takes anti depressants along with the anti shakey pills (that's what my daughter calls them!) I'm not sure it would be worth it since the slumps are so far a few between. I do tend to get mood swings more but those are more situational and last less than 24 hours. I just miss the days of not having seizures and not having to deal with any of this. It's enough to make someone ...well ...depressed.

1 reply
User Profile: BookLovingKitten
BookLovingKitten OP November 8th, 2015

@Angelapangela82

Hi Angela,

Please send me a PM.

(To do that click on my picture and it will take you to my profile where you can send me a message)

load more
User Profile: heartfulmusings89
heartfulmusings89 November 9th, 2015

Epilepsy is no fun. I remember growing up with childhood epilepsy and having to get an EEG every 6 months. I remember feeling unbalanced all the time. I remember my hand trembling as I tried to write. I remember not being able to do things other kids were doing, such as learning how to ride a bike. I remember being awake during one seizure and being completely scared by it. Luckily, when I was 16, the EEG came back normal, and I've been off meds ever since. However, I completely empathize with anyone who is still suffering, but I never know if it's going to come back or not. Epilepsy is like a volcano. It can lie dormant until something inside of us causes it to erupt.