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"Beautiful minds, wasted - How to not squander the potential of autistic people"

User Profile: AdVictoriam
AdVictoriam April 20th, 2016

"Autism is a condition that defies simple generalisations. Except one: the potential of far too many autistic people is being squandered."

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IN AMERICA in 1970 one child in 14,000 was reckoned to be autistic. The current estimate is one in 68—or one in 42 among boys. Similarly high numbers can be found in other rich countries: a study in South Korea found that one in 38 children was affected. Autism is a brain condition associated with poor social skills. It has a wide spectrum of symptoms, from obsessive behaviour to hypersensitivity to sound, light or other sensory stimulation, the severity of which ranges from mild to life-blighting. The range of consequences is also wide. At one end, the autism of a computer scientist may be barely noticeable; at the other, a quarter of autistic children do not speak.

Autism is a condition that defies simple generalisations. Except one: the potential of far too many autistic people is being squandered. Although around half of those with autism are of average intelligence or above, they do far worse than they should at school and at work. In France, almost 90% of autistic children attend primary school, but only 1% make it to high school. Figures from America, which works harder to include autistic pupils, suggest that less than half graduate from high school. In Britain, only 12% of higher-functioning autistic adults work full time. Globally, the United Nations reckons that 80% of those with autism are not in the workforce.

These numbers represent a tragic human toll, as millions of people live idle and isolated outside the world of work. Loving parents and siblings struggle to know how to help. Autism imposes hefty economic costs, reducing economic growth and swelling disability rolls. One American study suggests those costs could be as high as 2% of GDP. Fortunately, this need not be the case. Evidence, particularly from advanced economies, suggests there are plenty of things, from earlier screening to greater assistance with finding jobs, that could transform the lives of many autistic people (see Briefing).

Pieces in the puzzle

Early screening is essential. There is no definitive test for autism. It can be diagnosed only by observing behaviour. Most babies learn by watching their parents smile, hug, eat and bicker; autistic children often fixate on inanimate objects or play with their toys in an oddly repetitive way. Relying on diagnosis by observation makes the statistics around autism slippery: one reason the conditions incidence has risen in recent decades is that doctors have changed the way they detect it. Yet there is little doubt that early diagnosis and intervention can help autistic childrens brains develop better. If parents fill in a detailed questionnaire about what their children can and cant do, doctors can usually spot the symptoms by the age of two. Speech therapy and other intensive treatments can help an autistic toddler cope and encourage learning and interaction at an age when the brain is at its most plastic. A study in 2013 in Washington state found that, though costly, such early coaching paid for itself within eight years by reducing the need for extra help in school. Alas, the average age of diagnosis in the rich world is three and a half.

A second aim should be to provide autistic children with schooling that suits them. A debate rages about when and how to include autistic children in mainstream classes. The evidence argues against blanket rules. Some do better when mixed in with other children and given additional support. Some need to be taught separately, either for their own sake or because they are disruptive. Others need a bit of both. Whatever the degree of integration, teaching autistic children effectively will require more funding, to train both specialist and mainstream teachers. In one study 60% of British teachers said they felt unprepared to teach autistic children.

From genes to synapses

Maximising the returns from this investment in education means ensuring that autistic adults find work. Not all such people can hold down a job. But the high-functioning among them tend to be deft analysts. They can spot patterns or errors in data that are invisible to most non-autistics, making them attractive employees for software firms.

Even less gifted autistic people often have an extraordinary capacity to focus and an eye for detail that make them effective workers. Their desire for routine and dislike of change make them loyal ones, too. They can excel at jobs that require precision and repetition, such as updating databases, stocking shelves, organising libraries or tinkering with broken cars. Firms that set out to recruit autistic workers, such as Walgreens, a big pharmacy chain, find them just as productive as their peers.

Plenty more companies could benefit from hiring autistic people. Agencies that specialise in recruiting them stress that even if they interview badly (not making eye contact, taking questions too literally), they may still be good workers. For autistic candidates, employers should consider replacing interviews with tests of relevant skills—filing tests for filing jobs, coding tests for coding jobs, and so on. Once an autistic person is hired, small adjustments help employers to get the best out of him: for example, by providing a calm workspace and clear instructions, expressed textually or visually rather than verbally. (Teaching managers to give clear instructions is a good idea for other reasons, too.)

The final element of an ambitious autism agenda should be greater investment in research. Medical understanding of the condition has improved since 1949, when the psychiatrist who first identified autism blamed cold, unloving mothers for making their children withdraw into themselves. Scientists today are sure that genes play a role, as do environmental factors. Still, many questions remain unanswered, both about the conditions origin and its progression. The amount of public money spent studying autism is shockingly modest. Britains government spends a trivial 4m ($5.6m) a year. America shells out around $200m a year—about what it costs to look after 100 severely autistic people for a lifetime. Such sums are dwarfed by the opportunity cost of having so many potentially productive people dependent on others. Beautiful or otherwise, an autistic mind is a terrible thing to waste.

Written by The Economist

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User Profile: KRN
KRN April 24th, 2016

@AdVictoriam This is wonderful forum post! i hope everyone could see this! This is very helpful especially when it comes to awareness :)

User Profile: Geecat
Geecat April 26th, 2016

Wow. This is a good read. I wasn't diagnossed until after highschool - I'm part of the statistic- I didn't graduate (though not because of my intellegence level- I started college a year early instead of finishing highschool) Since being diagnossed, it's been nice to read of others like me in part because I've always felt like an alien to an extent.

15 replies
User Profile: KRN
KRN April 26th, 2016

@Geecat wow that is really nice :) you can PM me and let's talk more about this, if you want :)

User Profile: placidCity1574
placidCity1574 June 15th, 2016

@Geecat hi my name is Jon I was diagnosed with autism in 2006 I wondered if we could be friends

13 replies
User Profile: ladylazarus1971
ladylazarus1971 June 15th, 2016

@placidCity1574 Hi sweetie! I am hope I am not butting in, but I wanted to introduce myself to you in case you might want to collect another friend. ;) My diagnosis process is sort of up in the air. I am an older adult, but relate to people of all ages. There is a ton of great stuff here in the ASD forum, and all over 7 Cups. Do some fun exploring, and perhaps we will run into each other from time to time. I hope we get the chance to become 7 Cups buddies!

12 replies
User Profile: placidCity1574
placidCity1574 June 17th, 2016

@ladylazarus1971 hi thank you for messaging me I would like to be friends with you

11 replies
User Profile: ladylazarus1971
ladylazarus1971 June 17th, 2016

@placidCity1574 I would love that! Welcome to the neighborhood. :D

10 replies
User Profile: placidCity1574
placidCity1574 June 17th, 2016

@ladylazarus1971 how are you

9 replies
User Profile: ladylazarus1971
ladylazarus1971 June 17th, 2016

@placidCity1574 I am alright today, thanks to a loving friend who pulled my ugly mood up out of the gutter. I hope you are doing well too, sweetheart. If you ever got in rotten, useless moods like I do, always know there are TONS of people on 7 Cups who will be glad to see if they can help you change them. I'd be glad to be one of them too!.

Have a phenomenal day honey. <3

8 replies
User Profile: placidCity1574
placidCity1574 June 18th, 2016

@ladylazarus1971 glad you are okay I cry everyday

7 replies
User Profile: ladylazarus1971
ladylazarus1971 June 18th, 2016

@placidCity1574 I am very sorry to hear that, honey. Maybe the next time you feel so sad, you can check out one of the group chats here, or look at some of the super silly jokes in the forum threads under Fun and Relaxation. They can be soooo dreadful that you can't help but crack a smile. I really hope you can start feeling better soon.

6 replies
User Profile: placidCity1574
placidCity1574 June 20th, 2016

@ladylazarus1971 what you been doing today did you have a great fathers day with your dad what is your email

5 replies
User Profile: ladylazarus1971
ladylazarus1971 June 21st, 2016

@placidCity1574 Hi sweetheart, I wanted to respond quickly to your checking-in message; so sweet of you to keep contact here! :D

I am extraordinarily exhausted-- had a neuro-psych evaluation today and haven't slept or eaten in quite some time. Is it ok if I respond tomorrow? I love hearing how you are doing. But, I am entirely out of my gourd, and won't make much sense like this. Let's keep talking, shall we?

User Profile: ladylazarus1971
ladylazarus1971 June 22nd, 2016

@placidCity1574 Hey darlin'! I have been wondering how you have been over the last couple of days. I certainly hope to hear that they have been better than the ones in which you cry.

I am enjoying our interaction here so very much, and look forward to logging on to find a message from you. You asked for my email, which would be lovely to give to you so that we can continue to interact elsewhere as well as here. But, 7 Cups rules are very clear that we are restricted from sharing our outside-of-7-Cups contact information. And the rule makes a lot of sense, considering what a breeding ground it could be for predarory jerks who could take advantage of someone in emotionally-charged circumstances. I would be so glad to conrinue our talks here, if you would like. Hopefully, you are not too let down by this rule, sweetie, and I know you will understand the need to play by the rules.

Please, please post again so we can chat about this, and whatever else you would like to discuss, and to let me know how you are doing. <3

3 replies
User Profile: placidCity1574
placidCity1574 June 24th, 2016

@ladylazarus1971 hi I hope you are okay I have been sad and suicidal everyday do you have any pets what your hobbies

2 replies
User Profile: ladylazarus1971
ladylazarus1971 June 25th, 2016

@placidCity1574 Hi honey. Yeah, I am doing okay. We can talk more about my hobbies and stuff a bit later, but right now, I wanted to introduce someone to you. Remember when I said I had a great friend who made me feel better this last week? He is a Listener here on 7 Cups, and he often makes me feel better.

Since I am a Member like you are, and we can't PM, I wondered if maybe you would like to talk to him when we can't message back and forth. I ralked about this with him, and he would love to get a chance to message with you if you would like to talk. He is going to leave you a message in a moment to let you know who he is, and how to contact him more directly, if you would like to contact him.

I think you two would connecr well- and at least, it might be a good chance at being able to contact someone more directly than here in the forums. Please contact me here as much as you'd like, but maybe try @JunkieSeperstarIsListening. I feel like he would be a good resource for you.

User Profile: ladylazarus1971
ladylazarus1971 June 28th, 2016

@placidCity1574 I was hoping to find a message from you sweetheart. I hope very much that you are doing well. Please consider contacting JunkieSuperstar. He is a lovely person. XO

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@ladylazarus1971

@placidCity1574

Hi there! ladylazarus1971 mentioned you might be interested in talking on 7cups. I'm a listener, so if you like you can go ahead and leave me a private message. You can do so by clicking on my name at the top of my post and there should be a button in my profile page to leave me a message. I look forward to talking to you!

junkie