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Rare Disease & Equity in Healthcare

AffyAvo February 27th, 2022

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Information from Rare Disease Day:

COVID-19 has shone a light on pre-existing healthcare inequalities for people living with a rare disease.
This is why we are calling for EQUITY for people living with a rare disease in 2022.

1. Have you struggled with equity in Healthcare due to a rare disease?

2. What has your experience been with Healthcare during the pandemic?

3. What tips have you found that has made getting good healthcare a bit easier?

4. What improvements do you expect to see in the upcoming years when it comes to rare diseases and healthcare?

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AffyAvo OP February 27th, 2022

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theriverissinging March 1st, 2022

@AffyAvo ♥️

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It's a graphic of earth with a smiling face with a sparkling aura behind it and hands holding a white banner that says "Rare Disease Day, Feb 28th 2022". Written at the top: "No disease is too rare to care." Via @/chronicloveclub on instagram.

1 reply
AffyAvo OP March 4th, 2022

@theriverissinging I love that, thanks!

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