lilmizinvizme
3,187
M
Seeking Light
PathStep 61
Compassion hearts274
Forum posts4
Forum upvotes5
Current upvotes5
Age GroupAdult
Last activeSeptember, 2019
Member sinceAugust 12, 2019
Bio
I'm a geeky tech in my 30's that is trying to live well with narcolepsy with cataplexy.
Most of my work is done online in SharePoint and website development. Many folks with narcolepsy aren't able to work, but luckily I've been able to find a job that gives me the flexibility to be successful.
In my freetime, I like to play games like Destiny 2, Final Fantasy XIV, Fallout, Skyrim, Borderlands, Monsterhunter, etc. Every week I play D&D with a small group of friends. I love all things Tolkien and Star Trek. My partner and I love to cuddle up and watch anime together.
In case you're curious...
Narcolepsy is a neurological disorder with autoimmune causes that causes persistent sleepiness and additional symptoms such as brief episodes of muscle weakness known as cataplexy, vivid, dreamlike hallucinations, brief episodes of paralysis when falling asleep or upon awakening (sleep paralysis), and fragmented nighttime sleep. In people with narcolepsy, the regulation of sleep is disrupted: the boundaries between wakefulness and sleep are less distinct, and elements of sleep and wakefulness can mix together.
Basically, I have the inability to regulate my sleep/wake cycles. Unlike what has been portrayed in movies, I can usually tell when an attack is coming.
Most of my work is done online in SharePoint and website development. Many folks with narcolepsy aren't able to work, but luckily I've been able to find a job that gives me the flexibility to be successful.
In my freetime, I like to play games like Destiny 2, Final Fantasy XIV, Fallout, Skyrim, Borderlands, Monsterhunter, etc. Every week I play D&D with a small group of friends. I love all things Tolkien and Star Trek. My partner and I love to cuddle up and watch anime together.
In case you're curious...
Narcolepsy is a neurological disorder with autoimmune causes that causes persistent sleepiness and additional symptoms such as brief episodes of muscle weakness known as cataplexy, vivid, dreamlike hallucinations, brief episodes of paralysis when falling asleep or upon awakening (sleep paralysis), and fragmented nighttime sleep. In people with narcolepsy, the regulation of sleep is disrupted: the boundaries between wakefulness and sleep are less distinct, and elements of sleep and wakefulness can mix together.
Basically, I have the inability to regulate my sleep/wake cycles. Unlike what has been portrayed in movies, I can usually tell when an attack is coming.
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