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kez1981
719 M Little Steps
PathStep 35 Compassion hearts22 Forum posts27 Forum upvotes43 Current upvotes43 Age GroupAdult Last activeAugust, 2021 Member sinceJuly 2, 2021
Bio
Never judge we all have a story to tell doesn't matter how big or small every person matters even the ones who aren't here anymore they had a life story to tell.
Recent forum posts
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CAN ANYONE ADVICE
Disability Support / by kez1981
Last post
 August 6th, 2021
...See more BIG RANT COMING Please can anyone advice me I receive daily care at the moment until I can get back on my feet I have other disabilities but my feet has me bedbound at the moment getting bloods and assessments to figure out why . I received a email from my care manager stating that she was told that I don't need the daily care no more that carers are coming in not having much to do so you must be going around your home . The reason why I didn't need the same care was because doctor put me on a new medication and it knocked me for six I was sleeping a lot not managing to drink or eat how I did before . Carers were aware as they kept on saying how sleepy I was I could not function keep my eyes open they told me I had to drink etc and I explained I will once I can actually see my soup as I'm no having accidents then next landing up in hospital with burns I have more than enough to deal with they agreed just you sleep it off they said . So in my email says 26th July my care will be reduced to no jugs filled of water to boil with kettle no toilet emptied no washing my cups and things I use . That I missed my care review that was planned I did text my care manager told her I had hospital appointment for my jaw and getting injections that day I said I'm sorry I can't make it we can plan another time as I've waited for a whole 6 months for this and important to me for my health. The report came back saying she had read my message so thought that bit is sorted so she never contacted me or my mum or doctors to confirm facts she took it on her own to decide my care package on word from carers to care company. So plan is Monday wash and medication left until Wednesday nothing else done then carer comes back Wednesday to give medication until Friday then back get a wash medication for weekend so I want to take this further what about my eating and drinking like and toilet tomorrow my water jugs will be empty no any support I believe that I can report neglect here as that's my health they are playing with and it's not the first time in May I had to fight to get extra care as I couldn't shower was 18 days my mum and I asked for help in my room told no and never got a explanation why so I contacted my doctor and he got me the daily care. Now taken away from me over someone thinking I didn't need care. Shouldn't my care manager contact me as I'm the sick person .I emailed her explaining why things didn't need done in my room I'm so upset feel like I have a right to say how I feel it never ends causing my mum worry happens to me because of this she's .I've been with this care company since 2014 it's now 2021 and they still play with my health I'm never listened to and I I wouldn't be getting tested for so many things if I didn't need this care and I wouldn't have consultants who look after my illnesses if it wasn't needed . She's gone on some one else's opinion and I'm the one suffering when no need I should be relaxed ,calm and happy that I'm being supported in my life but my health is making me feel sad that this is the treatment I'm receiving for things that are out my control . I was starting to accept the life I live having so much wrong with me but I don't trust the care system my faith in knowing that one day I'm going to be safe and happy with support has been crushed and the one person who can fix it is my care manager she gets the last say. I'm gathering proof for my own sanity no compassion there that's for sure I couldn't ever treat anyone like that it's wrong everyone in life will experience ill health at some point quality of life wellbeing matters .
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The word TEA can be used to support us
7 Cups Online Therapy / by kez1981
Last post
 July 11th, 2021
...See more I learned this today while doing my feelings on a journal app thought would come in handy for us all . T thoughts E emotions A actions We can understand how our thoughts affect our emotions and actions we can inspect our thoughts to see how true they really are when we need to we can learn how to swap unhelpful thoughts for more balanced ones and make us feel better. For example Your expecting a call at 4pm it's now 5pm and no one has called you back . BAD T thoughts they have forgotten me E emotions sad A actions physical anger . GOOD T thoughts they are very busy today will get back to me when they can . E emotions calm A actions wait for my call It really made me understand how this can support us in different things that can happen to us What really amazed me was they use the word TEA lol how cool is that for negative and positive thinking and with 7 cups of tea I thought idea for here x
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Skin and sweat conditions
Disability Support / by kez1981
Last post
 August 5th, 2023
...See more Hi there nice to meet you all I was wondering if anyone suffers with Plague Psoriasis or primary hyperhdrosis it would be great to talk and get advice on how you manage these chronic skin conditions thanks so much x
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My diagnosis
Disability Support / by kez1981
Last post
 September 19th, 2021
...See more Fibromyalgia Chronic fatigue syndrome Psoriatic arthritis Tmj jaw issues Swan neck fingers in left hand Tactile Allodynia Mechanical Allodynia Thermal temperature Allodynia Have home care coming in to look after me on many medications and soon to be adding more later this month the chronic pain from these all push my buttons to the point of can't cope nothing switches off hard to function and can make my mood very low I'm waiting see a pain management psychologist and rehabilitation to get me back out this bed as I miss the bits of life I have especially my exercise bike and doing my physio and playing my keyboards if any of you have these would be great to get advice on how to cope I have sticks, crutches , walker and my wheelchair that my family take me out in hoping to gain independence by purchasing a electric wheelchair and waiting to move out of my place to a wheelchair friendly house next year x
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New to this hi everyone
Mindfulness Center / by kez1981
Last post
 December 24th, 2021
...See more Been trying to find something like this for a long time I'm just taking time to figure how all this works nice to meet you all .
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Needing some mindfulness tips for myself
Mindfulness Center / by kez1981
Last post
 August 21st, 2021
...See more I'm going through a difficult time with a care package I'm currently receiving for my own health issues I've lost my way due to being treated mentally and emotionally like I'm nothing I'm struggling with worthlessness and being a burden and bitterness towards neglect and being left to suffer in that situation and hate towards me for being so physically unwell I've been treated this way since 2014 messing with my feelings towards myself I've lost trust in the home care given I just want to work on mindfulness strategies to try build myself up mentally for another care package .
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