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celestialwizard
517 M Embraced 4
PathStep 4 Compassion hearts34 Forum posts9 Forum upvotes17 Current upvotes17 Age GroupAdult Last activeAugust, 2024 Member sinceApril 3, 2020
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Robin • he/they • 22 • tea enthusiast

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The frustration of not having a diagnosis
Disability Support / by celestialwizard
Last post
 July 27th, 2024
...See more I’ve been dealing with a myriad number of physical issues since I was a pretty young teenager, but I just can’t get doctors to actually listen to me and believe that I’m telling the truth, much less finding any treatments or even having a name for whatever is wrong with me. I’m so sick of feeling horrible all the time, having no energy, constantly getting injured, and always being in pain, but at this point, I’ve pretty much given up on ever finding a doctor who’ll actually believe me. I can’t afford to look around for new doctors; I’m on state-provided low income insurance so I don’t have much of a choice in who I see, and beyond that, I’m also trans, which makes it even harder to find providers who’ll actually take me seriously and listen to what I have to say. My life is a complete trainwreck, I can’t keep a stable job because I physically don’t have the energy to do so, and I can’t access any kind of real support or even be able to explain why I can’t do so much just because I don’t have an official word for whatever it is that’s wrong with me. I know this is far from a unique situation, and I shouldn’t complain so much, but god, I’m just so tired of it all. I doubt I’ll ever actually find a medical professional who’s willing to believe what I have to say about my own body and experiences at this point.
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