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Sabran
372 M Embraced 3
PathStep 4 Compassion hearts17 Forum posts4 Forum upvotes8 Current upvotes8 Age GroupAdult Last activeJuly, 2022 Member sinceJanuary 17, 2022
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Finding a job with hypersomnia and chronic farigue
Disability Support / by Sabran
Last post
 February 20th, 2022
...See more So, I have idiopathic hypersomnia. That cause me to sleep like, a lot. I usually sleep 12-14h but it can be a lot more. Regularly I sleep for 24-72h, especially after I had a day more tiring than usual. When I say more tiring, it can just be like visiting my family and having diner with them, or going to uni and trying to listen an interesting lecture for 4 hours. Just that. I feel like I'm borrowing spoons from the next few days by doing something that barely take 5% of an abled person. So I'm trying to have my disability recognised and I'm filling for financial help from the state but I'm terrified they'll say no. Because it's a rare disease and an invisible one at that. And the entire process probable gonna be a year. I'm a college drop out because I couldn't keep up even though I tried so hard. But I'm 30 and there's no cure for my condition (there' s not even research for a cure bc it's so rare) And if I'm denied money, I don't know what I'm gonna do. I don't have any degree or skills. And I have no idea about what I'm physically able to do. I can't even work a 8hours-long day of office work. And there's also the fact that my mind doesn't work properly because of the fatigue. I suffer from memory loss, problem of focus, stuffs like that. Really, the only thing I could do is mattress tester maybe.
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