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KuroYouri
293 M Embraced 2
PathStep 30 Compassion hearts16 Forum posts16 Forum upvotes17 Current upvotes17 Age GroupAdult Last activeAugust, 2023 Member sinceSeptember 8, 2016
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Trimethylaminuria [TMAU] Awareness and Support
Disability Support / by KuroYouri
Last post
 July 19th, 2018
...See more Trimethylaminuria or TMAU for short [also known as fish (mal)odor syndrome] is a lesser known but common liver disorder/disability in many people internationally. To put in layman's terms, TMAU carriers have a not-so-pleasant odor that range from smelling like raw fish to dry urine and so forth. No matter how clean and/or hygienic a carrier is the odor will still be present. In addition, TMAU symptoms [from what I've observed] do not usually show itself to the carrier until teen and early adult years making it hard for the person to diagnose. To this day there is no cure or realiable treatment of TMAU making life for TMAU carriers stressful to say in the least. To educate yourself and others more, please visit this list of references [https://en.wikipedia.org/wiki/Trimethylaminuria#References]. I myself am a carrier but fortunately I do not have the worst case yet since I am in my early twenties. Since I avoid seafood, egg yolk, and products with soy ingrediants, I think it is only noticable once I break even a little sweat. So far it has not majorly impact my life but when I do notice other people hold their nose or give me a demeaning look after I sweat, I do get depressed at times. People like my mother become antisocial at work and do not dare to go to social events because of their TMAU symptoms. Also many people end up having to retire early and apply for disability. I created this thread in order to spread the word and for people with these experiences to release their feelings but to also deal with them in a positive way.
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